Time is Brain...
...Treatability should be prioritized in the diagnostic evaluation of GDD / ID
Our evidence based protocol is designed to effectively identify
treatable inborn errors of metabolism in patients with GDD / ID
Ride the Tide...
…improve patient outcomes!
TIDE BC is the first in the world to prioritize the identification
of treatable diseases for intellectual disability patients
More information & referral process by BCCH specialist
- There are 81 treatable inborn errors of metabolismwhich may account for 5% of all global developmental delay (GDD) / intellectual disability (ID) cases.
- There are 91 therapiesvarying from sick-day management, dietary restrictions & supplements, medications, to haematopoeitic stemcell transplantation. Most are accessible, affordable with acceptable side-effects.
- These causal treatmentsmay improve or stabilize psychomotor & cognitive development, seizures, neurologic deficits, behavioural/psychiatric disturbances and MRI abnormalities.
- Early recognitionof one of these treatable conditions in a child with delay or intellectual disability is essential; Time is brain!
- This evidenced based Protocolis designed to effectively identify treatable inborn errors of metabolism in patients with global developmental delay / intellectual disability. Please use it to improve health outcomes of affected children in B.C.
- Read all steps of the Protocol as outlined abovePlease note that this is an interactive document with clickable segments that hold more information.
- Referral for further diagnostic evaluation of (treatable) ID/GDDhttp://www.tidebc.org/Fax to Division of Biochemical Diseases (number 604-875-2349)For referral form TIDE Complex Diagnostic Clinic please visit this page.
Copyright 2011 - 2016
BC Children's Hospital
Rm K3-208, ACB
4480 Oak Street
Vancouver, B.C. V6H 3V4
Phone: 604-875-2628 (administrative)
Phone: 604-875-2880 (clinic)